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Friday, October 3, 2014

Positive vibes

I just wanted to thank everyone that has prayed for our family and our sweet Arland. It has been a really long hard journey that is no where near over. And we are ok with that. I just want my Arland seizure free and healthy. I am so thankful for all the positive advice and words of wisdom for us. We are so new to all of this that we are looking for all and any answers to help us find a way to help our little boy. His medication he is on seems to be working and he is on 2 medications, we know from our experiences with him so far that he is NOT ready to be weaned off of either of them, his brain needs both. Arland has been diagnosed with epilepsy, he is general tonic clonic, which is defined as having seizures over his entire brain. His entire body shakes. I am writing this post to answer some questions that I am asked on a regular basis by friends and family. 
I have changed his diet. He is off milk and  most sugar. He takes a multivitamin, probiotic, b-12 supplement, and fish oil everyday. 
Most people reading this probably think, why is she writing all this? Well, I have a lot of people with really great intentions telling me I need to be doing a lot of different things for my little one and I am so thankful for the advice. I just hope nobody is offended when I choose not to implement their advice. I am so thankful for the effort that people make in wanting to help better my little ones health. And I ultimately want the absolute BEST for him. Which means that there are certain things which I think could benefit him (medications, oils, supplements), but through my own personal research and question/answer I have found that a lot of things which seam harmless or "natural" can also be harmful for my little one. Many things can help seizures, but MANY  things can cause seizures. This condition which my son has is not a broken bone or some kind of cough/cold to be treated. It is a condition of the brain, which ultimately controls our personalities, behavior, and our quality of life. I am open to trying the new "treat all" "healing""natural" path for my little one, but what I need is for people to understand that I am going to be hesitant with anything and everything (medication, oils, antibiotics, vitimins) because in the end I DO want a cure or answer to this horrible disease. I DO want my son to be healthy, and I don't want anything to hurt him. 
So when something claims to be the  "cure all" for epilepsy, I want facts and statistical evidence, not just testimonials. 
Thank you all for your love and support, I am SO EXTREMELY hopeful that my Arland will be able to beat this. He is stronger and smarter then anyone I know and he has the biggest heart. We could not be where we are with out our Heavenly Father and his guidance through this trial. 
Thank you again from the bottom of my heart. Hannah 

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